PXE Leg Pain Study

How does exercise impact the pain of intermittent claudication (lower leg pain)?

Statins and Walking

Josanne McLean's picture
Walking proven to work for PXE.

I got down to about 70 meters walking before onset of pain.  I was referred to vascular surgeons who diagnoses the intermittent claudification at age 32 despite having the symptoms since early childhood.  Surgeons weren't interested but did refer me to a Chemical Pathologist who started me on statins.  I have been through most of the statins available (Pravastatin, Simvastatin and now Atorvastatin) but have only ever been able to tolerate the lowest doses.  With Atorvastatin being taken at 10mg 3 times a week, as anymore I get accumulative build up of side effects.  When my leg pain continued to increase despite the well managed cholestero, I was seen again by the vascular surgeons who put me in a Nordic pole walking trial.  I had to walk a minimum of 30 minutes 3 times a week for the trial.  The use of the poles increased my cardiovascular rate and produced dramatic improvements in the max distance before onset of pain.  I have continued to walk and saw a continued improvement 2 years running in my ABPI results.  This year I switched my goals and don't walk as often.  My ABPI result shows a decline!  Back to walking for me.  Running is too hard and sounds likely to damage my joints too much.


Login or register to comment on this Idea.

Volker Seidler's picture

Josanne McLean's picture

I don’t currently used the poles for walking.  I don’t drive so the ones I have are cumbersome to carry around.  I do however maintain my walking using a geolocation game to keep me motivated.  It’s not as effective as Nordic Pole Walking but it is more accessible at any time and place for me.

Add new comment

Add Your Comment

Login or register to comment on this Idea.