Wed, 02/01/2017 - 19:55
OK - let's imagine we are going to study whether or not PXE is affected by diet and exercise? If you could measure some movement or exercise and see how that impacted your experience of PXE, what would you measure?
If you wanted to chart what you eat - what do you think makes a difference in how your PXE progresses?
I look forward to your thoughts!