Thu, 01/05/2017 - 11:54
I have PXE and was diagnosed in my 30s. I am now suffering with my second frozen shoulder. I am wondering how many other PXE'ers have experienced frozen shoulder and whether this is connected or an anomoly. Due to previous retinal bleeding I am not taking any anti-inflammatoeies or pain killers so living with chronic pain isn't fun! Anyone else suffer frozen shoulder and how did you cope with the pain?