PXE International promotes research that is driven by, and centered on, people affected by PXE. PXE LAB is a forum for PXEers and researchers to brainstorm, collaborate, and develop a research study on nutrition and exercise.


Tuan To's picture

I were diagnosed with PXE in the 1980's . Now I am 61 years old and fortunately, my PXE condition is under control.

I am checking amsler grid daily and check up every year with my opthalmologist. I am watching my diet and daily exercise - 40 minute brisk walk at lunch time and 30 minutes of stationary bike and elliptical after work. My plan is to burn at least 300 calories with walking and exercice per day. I do indulge myself with eating out occasionally.



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Greg Hale's picture

What circumstances lead to your diagnosis of PXE?

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