PXE LAB

PXE International promotes research that is driven by, and centered on, people affected by PXE. PXE LAB is a forum for PXEers and researchers to brainstorm, collaborate, and develop a research study on nutrition and exercise.

New treatment for PXE

Jazztune's picture

I found that in the Netherlands they have discovered a very effective treatment for pxe. See this article: https://tech2.org/netherlands/umc-utrecht-discovers-treatment-for-rare-disease-pxe/

Also, pxe people should begin taking Vitamin k2 Mk7. Must be this type of vitamin K. 100-200mcg a day. Get pxe doctor advice. This vitamin takes calcium from arteries and puts it in your bones. Very effective. 

 

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nutro's picture

Is anyone (e.g., PXEinternational) looking into the UMC Utrecht's treatment? Is this true? Is it approved? and how can PXErs get it?

Ravi D's picture

Has any one tried this treatment? 

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