PXE International promotes research that is driven by, and centered on, people affected by PXE. PXE LAB is a forum for PXEers and researchers to brainstorm, collaborate, and develop a research study on nutrition and exercise.


Follow individual announcements (look for the links below each one) to hear questions and comments from discussion participants.

Hi, Friends!

Sharon Terry's picture

Welcome to PXE LAB, a platform where we can work together to determine a question we can study about PXE and nutrition/exercise. We really need to hear from you about our first question: What nutrition and exercise choices can impact living with PXE? We need you to share your ideas and help identify a key question to make sure we investigate issues that are most important to you. Here at PXE LAB, you can comment, like, and share other ideas. Join the discussion now!