What is iCureCeliac?
iCureCeliac is an online patient-powered research network created by Celiac Disease Foundation through a grant from the Patient Centered Outcomes Research Institute (PCORI). Its purpose is to enhance and accelerate research to better understand and ultimately cure celiac disease.
What makes this research network "patient powered"?
It means patients directly contribute both medical information and their experiences living with celiac disease/gluten sensitivity by entering their data online to help researchers focus their efforts on the issues that are most important to patients.
How do I add my patient power to iCureCeliac?
If you are a person living with celiac disease or gluten sensitivity you can add your personal information to the iCureCeliac databank here. Caregivers can add information on behalf of someone else, so all voices can be heard.
What is Mosaic?
Mosaic is our online community devoted to determining how to make best use of the iCureCeliac data. From a patient perspective, what are the most important things we can learn with iCureCeliac? What are the questions most important to you?
What will happen to our Mosaic recommendations?
The Celiac Disease Foundation will be analyzing all of the ideas, experiences, opinions, questions, and concerns shared on Mosaic in order to launch collaborations with researchers.
In other words, as celiac disease patients we are
1) creating the databank (iCureCeliac),
2) identifying, evaluating and prioritizing research questions (Mosaic), and then
3) partnering with researchers to actually conduct the research!
I am not a patient. Can I still join the conversation?
YES! Mosaic allows a diverse group of people to work together to brainstorm study ideas. Everyone who cares about celiac disease and gluten sensitivity is welcome-- patients and their families, caregivers, friends, researchers, healthcare providers, policy makers... We need all voices to move this research forward!
Is this a place I can get my questions answered about celiac disease or gluten sensitivity?
Our Mosaic online community has a specific goal: design research studies. For general information about celiac disease or gluten sensitivity, support, or educational opportunities, please visit celiac.org