PXE Veggie/Vegan Study

How does a vegetarian or vegan diet affect symptoms caused by PXE?

15 yrs vegetarian

Robyn Matthews's picture

I was diagnosed at 2 yo, and ate a typical meat & 3 veg diet until around 18 when I moved to japan and adapted to a typical Japanese diet of minimal meat, lots of veg and variety and fish. From 25 I became vegetarian and still am now at 40. 

I have skin lesions on my neck and in my joints, peau de orange, angoid streaks and vascular claudication. However, even after 2 children I have no stretch marks and have had no advancement of my condition since I was 20. 

 

I attribute my diet, healthy lifestyle and positive outlook to be the key reasons behind my pxe remaining stable all of the years. 

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