Mon, 06/12/2017 - 07:18
I was diagnosed with PXE when I was 25. I am now 61 years old. I work internationally and this means I have had no consistent medical care. I have been a vegetarian for all of this time, and have always engaged in sport. I still run 10 km three times a week now. In addition to gym workouts. I have the skin issues and lost sight in one eye, but have never let dominate my life. It is what it is.