Many of you shared about your lifestyle as a vegetarian or vegan and how you believe it has impacted living with PXE. Can living a vegetarian or vegan lifestyle lead to fewer PXE related symptoms? We can use the PXE & LIFE data from PXEers to find out!
What questions should we focus on to create this study? What dietary practices do you think impact specific PXE symptoms?
Share your ideas here!
If you are interested in becoming part of the Veggie/Vegan Research Team to develop a plan for this study, email Eliza at firstname.lastname@example.org and check out this page for updates!