Has anyone though/ used a rolling teqnique to help relieve the pain and aches? There are all sorts of implements available and they certainly help to relieve muscle sorenes. Would the process of rolling help to break down/ relieve claudication?
yoga has helped my vascular claudication immensely. And by yoga i don't mean crazy yoga. Just simple stretches but doing them daily along with some simple inversions.
i have used vibration plates at the gym, which I also felt helped.
They increase the blood flow and also increase bone density so I can see this being very beneficial for PXE with the wrongly processed calcium factor.
I have tried a lot of ideas and still am working on it, so far all I found that works is having a friend or someone at least doing pressure on ym legs like a strong pressur and a warm heating pad. I can't walk long it increase the pain or stand long it makes it worst. I can't walk long distance. Exercise for me is not an option. So only thing I found was to reduce some fo the pain is pressure and also some medicinal maryjuanah, I got a prescription.
Cholesteriol lowering drugs (statuns) may cause leg pain. At least Simvastatin. I am presently testing if stopping to use Atorvastatin wil decrease my leg pain.
Has anyone tried wearing compression socks to get rid or lower their leg pain in the calf muscles? I know many runners wear compression socks while they run to increase circulation and reduce leg cramps. Has anyone with PXE tried this?
I got down to about 70 meters walking before onset of pain. I was referred to vascular surgeons who diagnoses the intermittent claudification at age 32 despite having the symptoms since early childhood. Surgeons weren't interested but did refer me to a Chemical Pathologist who started me on statins. I have been through most of the statins available (Pravastatin, Simvastatin and now Atorvastatin) but have only ever been able to tolerate the lowest doses. With Atorvastatin being taken at 10mg 3 times a week, as anymore I get accumulative build up of side effects.
i have always engaged in sport and continue to do long distance running. I am 61 years of age and was diagnosed with PXE when I was 25. I do get tired legs at times, and consistent leg cramps at night or when stretching.
When I work out, especially, walk or run on the traidmill I feel less pain. When I feel the pains I know I miss my workout or I forgot to take my magnesium. I take the daily dose of magnesium and I have no cramp.
I walk my two dogs about 4 times a day usually at leas 1/2 mile each time. I didn't notice any difference between when I started and when the leg cramps started. However, I've always taken a potassium supplement. I was taking 2 a day NOW I take 4 a day. two in the morning and two at night. Taking 4 seems to have helped a LOT and the leg cramps have for the most part stopped. Just a few times a week, I get the start of a cramp - the worst are in my upper inner thigh and are so bad that I couldn't walk! This is one of the most painful parts of PXE.