PXE International promotes research that is driven by, and centered on, people affected by PXE. PXE LAB is a forum for PXEers and researchers to brainstorm, collaborate, and develop a research study on nutrition and exercise.

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Frozen Shoulder

Samantha Goldman's picture


I have PXE and was diagnosed in my 30s.  I am now suffering with my second frozen shoulder.  I am wondering how many other PXE'ers have experienced frozen shoulder and whether this is connected or an anomoly.  Due to previous retinal bleeding I am not taking any anti-inflammatoeies or pain killers so living with chronic pain isn't fun!  Anyone else suffer frozen shoulder and how did you cope with the pain?