PXE LAB

PXE International promotes research that is driven by, and centered on, people affected by PXE. PXE LAB is a forum for PXEers and researchers to brainstorm, collaborate, and develop a research study on nutrition and exercise.

Is PXE linked to Neurological Issues?

PJShutt's picture

Topic

My mother-in-law who was diagnosed with PXE in 2000 and has lost most all of her central vision was referred to a neurologist with the following symptoms: memory loss, shuffling of feet, fatigue, aching legs, urinary incontinence, etc.  The neurologist has done extensive testing and has not found any diagnosis. Her MRI's show extensive scarring (gray areas) that would be found in a person who has had a stroke or traumatic brain injury.  She has had neither to our knowledge.  Can this be linked to PXE?  Thanks for any help you can give. 

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