PXE Community

Announcements

Follow individual announcements (look for the links below each one) to hear questions and comments from discussion participants.

Next Step: Transform YOUR Ideas into Research Projects!

Sharon Terry's picture

Thank you so much for your participation in PXE LAB! We are thrilled to see such a great response from caregivers, families, researchers, and the PXE community. Some common themes came up about nutrition and exercise. The next step is turning these questions into actual research studies!

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Leg Pain Study

Veggie/Vegan Study

Long-term Follow-up Study