Tue, 06/06/2017 - 09:02 Last revised by Web Producer on Tue, 06/06/2017 - 09:29.
Thank you so much for your participation in PXE LAB! We are thrilled to see such a great response from caregivers, families, researchers, and the PXE community. Some common themes came up about nutrition and exercise. The next step is turning these questions into actual research studies!
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