PXE Community

Next Step: Transform YOUR Ideas into Research Projects!

Sharon Terry's picture

Thank you so much for your participation in PXE LAB! We are thrilled to see such a great response from caregivers, families, researchers, and the PXE community. Some common themes came up about nutrition and exercise. The next step is turning these questions into actual research studies!

Click on a banner to learn more!

Leg Pain Study

Veggie/Vegan Study

Long-term Follow-up Study

Login or register to comment on this Proposal.