JS-LIFE Research Challenge

We are writing a JS research plan. Join us now!

Ann Chang's picture

See your ideas in action. A Study Team made up of families with Joubert syndrome and researchers are using your comments posted on Mosaic to plan a Joubert Syndrome study.  Check out http://mosaic.ucsf.edu/js-life-research/challenge/post/39 to see the beginning of the research plan and post suggestions and comments.

 

This is your study. Tell us what you think!

Comments

Login or register to comment on this Discussion Topic.

Lorraine Johnson's picture

I think the ideas advanced are great!  They are common problems with diseases.  It sounds like tracking progression of disease would also be good.

 

Lorraine