JS-LIFE Research Challenge

We are writing a JS research plan. Join us now!

Ann Chang's picture

See your ideas in action. A Study Team made up of families with Joubert syndrome and researchers are using your comments posted on Mosaic to plan a Joubert Syndrome study.  Check out http://mosaic.ucsf.edu/js-life-research/challenge/post/39 to see the beginning of the research plan and post suggestions and comments.


This is your study. Tell us what you think!


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Lorraine Johnson's picture

I think the ideas advanced are great!  They are common problems with diseases.  It sounds like tracking progression of disease would also be good.