Fri, 05/22/2015 - 07:08
Thank you so much for your participation in Mosaic! It is inspiring to see great discussions among caregivers, researchers, and the Joubert Syndrome community. We see common themes emerging such as: how to obtain an earlier diagnosis, what are the common ways children are diagnosed, what are common medical complications, what is the impact of Joubert Syndrome on daily activities, and many more!
- Continue sharing your research ideas until May 31.
- Next up: Join us in June to post comments on the written research plan.