AliveAndKickn HEROIC Mosaic Research Community

HEROIC Mosaic: AliveandKickn’s mission is to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening. HEROIC Mosiac is a forum for the AliveandKickn community and researchers to brainstorm, collaborate, and develop a research study driven by shared discussions.

Comment on the following discussion topics.

  • Risk stratifications for the different Lynch genes by tumor location
  • Lynch syndrome management

“Like” someone else’s comment to express support for an idea you like and think is useful.

Share ideas or questions you have about Lynch Syndrome.

For more information on HEROIC Mosaic, visit our Community Page

  • SHARE IDEAS

    1. First scroll down to the the discussion topics
    2. Leave a comment, "like" and respond to others, "follow" discussions
    3. Your comments will influence a new research project

  • PLAN RESEARCH

    Research Teams now work together to draft the research plan. But they need your input! All Mosaic participants now:

    • Review the research plan
    • Ask questions
    • Offer support
    • Give suggestions to make good ideas even better
  • CONDUCT RESEARCH

    The Research Team conducts the study to get the answers you've been waiting for. Stay connected to:

    • See your input and comments put to action
    • Get updates on the progress or the study
  • SHARE RESULTS

    The study is now complete! The Research Team will post results and conclusions. All Mosaic participants now work together to make the research have an impact.

    • Share results with your community
    • Publish results in medical journals
    • Write about results in newspapers and magazines

Discussion Topics (2 total)

Displaying 1 - 2

Lynch Genes and Cancer Risks

Ann Chang's picture

What questions do you think need more research about how different Lynch Syndrome genes may be at higher risks for certain cancers more than others? 

Katt's picture

Comment: 

I agree that more testing of breast tumors in Lynch syndrome mutation carriers needs to be done.

Heather Hampel's picture

Comment: 

Linda,

Linda Wallace's picture

Comment: 

More research is needed into the connection between Lynch and breast cancers as well as need for

Lindsey Van Parys's picture

Comment: 

.

Lynch syndrome management

Ann Chang's picture

What questions do you think are important to address about how to screen for cancer, when and what risk reducing surgery to have, and using medications to prevent cancer (chemoprevention)?

Katt's picture

Comment: 

Yes, I think so. I think we need more information about what cancers are associated.

Robin Dubin's picture

Comment: 

Yes, sorry.  The links don't seem to be working so well.  But yes the article talks about a breas

Linda Wallace's picture

Comment: 

The link is Page Not Found - is this what you meant? 

Robin Dubin's picture

Comment: 

What is everone's opinion on research like this.  Do we need to do a study that would show the ga